Sunday, June 24

Well, we were moved out of PICU today, to the 6th floor (where we have already been 3 times) but the move went smoothly. We are hoping we won't have to be there much longer. On Wed. Preston will have his last surgery, Lord willing, to have a g-tube put in his tummy so I can feed him at home. Even though he may not need it for 6 weeks, it has to stay in that long. I think by then or before then, he will be eating again. He has been laughing a lot today! He laughs when someone says something funny or when watching dvds and he shook his head yes and no today! His mouth has been open more today and Jr. said his tongue could be seen some this a.m. All of this shows improvements, and he is closer to the day when he will be able to eat again. Today the PT guy got him up and he sat in a chair for a while. He can put weight on his legs and stand up, as long as someone is there to hold him so he doesn't fall. So slowly but surely Preston is coming back.
We could be home by the end of next week. We think we will probably need a hospital bed for now, and he will be tube fed, and in diapers for a while. The dr. has already been talking to some therapists about coming into our home to help Preston and also we hope to get Home Health to help with his baths, etc. each day. If Jr. were here all of the time, we wouldn't need them, but I really cannot handle him alone because he is such a big boy. So we feel everything will fall into place when the time comes.
We also are in need of a ramp as we have a lot of steps going up to our front porch. We are hoping there is some organization that will help with that. Jr. could do the work if we had the materials but right now we cannot buy all of the materials. But I have a friend in Easley who has a special needs daughter and has gotten help like this, so I plan to call her.
I am more encouraged now. Soon we should be home. I cannot wait for us all to be home again! Please pray the surgery on Wed. will be without complications, and infection free!