Tiring day

Well, I don't like afternoon appts. especially when the ambulance service is late getting us to our appt. and then this doctor's office that we went to today was not accomodating like the other places we have been, since we have to be transported by ambulance. AND the EMS personnel left us there, and this is the first time that has happened. The offices usually get us in and out quickly and the EMS people stay right there and bring us back home. Well, today that didn't happen.

Anyhow, the dr. says we may never know why Preston has had jaundice. It could be meds., of course, but he felt the medication we stopped was not the reason, but if it isn't, why does he seem to be getting better? He is not quite as yellow plus his stools are back to normal color. But since the meds. is getting out of his system, Preston has started shaking again. He had quite a long time of shaking today when we first got there. He was having what the neurologists called a "storm" so now we have to get him on another medication for that. Oh me! So in a.m. I will call neurosurgeon and see what they say. But I just remembered, he is not in his office tomorrow.

We are going to Greenville Memorial to have an ultrasound done on Thurs. a.m. and more blood work to see if the levels have come down any. We have to be there at 9:30. I dread it soooo bad. It is hard when you have to wait for someone to come and get you, and wait for someone to bring you back home, etc. But such is life right now.

So that is all I know right now.

Over and out for this time.